Impacto de la retinosis pigmentaria en la vida diaria y social

  1. María Teresa del Álamo Martín 1
  2. Isabel Álvarez López 1
  3. Juan R. Coca 1
  1. 1 Universidad de Valladolid
    info

    Universidad de Valladolid

    Valladolid, España

    ROR https://ror.org/01fvbaw18

Revista:
Cuadernos de trabajo social

ISSN: 0214-0314,  1988-8295

Any de publicació: 2022

Volum: 35

Número: 2

Pàgines: 195-207

Tipus: Article

DOI: 10.5209/CUTS.79095 DIALNET GOOGLE SCHOLAR lock_openAccés obert editor

Altres publicacions en: Cuadernos de trabajo social

Resum

Retinal dystrophies cause progressive degeneration of the retina in people who suffer from them, leading to loss of vision over the years that can negatively affect functional capacity and social participation. Our study aims to analyse how ocularcentrism contributes to aggravating the negative consequences of retinal dystrophies for the daily and social lives of the population who suffer from these disorders in Castile and León.This research used a mixed methodology with a QUAN+QUAL design. The quantitative part consisted of a case-control study with a non-probabilistic, purposive sample of 30 people with and without retinitis pigmentosa matched by age and sex. The World Health Organization’s Model Disability Survey, Brief Version (MDSb) was administered to all participants. The study compared external factors that can influence daily health-related problems, family and social support, and attitudes of others. The qualitative part consisted of the analysis of data obtained through in-depth interviews with the 15 people with retinitis pigmentosa in the case group. Significant differences were found between the groups, showing that people with dystrophies experience greater difficulties in their daily life than individuals who do not suffer from these disorders in areas such as mobility, household tasks and social participation. Noise, brightness, lack of technological means to facilitate accessibility and ocularcentrism in society represent a source of social exclusion, in addition to causing discomfort and tension. The results provide evidence that will enable social workers to intervene in order to promote the social participation of a population affected by a rare eye disorder, thereby preventing inequalities and advancing their rights.

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Fuente de los datos: Dialnet